A post for D bloggers day
I promised this would be an more upbeat post after my rantings yesterday. I have to say sometimes I am grateful for the people I have met because I have D. Let me see the people whom I have met personally and admire so much. A lot of them are children or parents of D. Some are others with type 1. First I have gotten to meet Ellen and Zach. Ellen is just an inspiration to me. She campaigns for a cure and works hard with the DRI. Zach is another inspiration. He is a great kid who handles d as if it is a bump in the road. I have met Sally and Joey. Sally is such a sweet lady and Joey is just such a nice boy. I actually put a rapid D in Joey. I have to say I think it is harder to insert a set into a young child then anything else. Such a different perspective. I have also met Carol, William, Roderick, and Hal. William is the type 1 in this family. He is so little but handles the D like a troooper. I have had the pleasure of meeting Heidi of D-log cabin fame. She would tell you I never shut up. She is the quietest person I have ever met. I had a ball in DC and at FFL conferance with her. She is such a sweetie. I have met Stacey, Jesse, and Jesse's dad. I forgot the husbands name sorry. Jesse just makes me laugh and Stacey is a fantastic mother. I have met Wendy from NY and Jessica these two inspire me also. These are just the people I have met through CWD. Oh I also forgot. I got to meet Marissa Hitchock and Jeff Hitchcock, the inpiration and creator of childrenwithdiabetes.com. I have also gotten to meet Laura Billetdeux and her son Sam. I know there are people I am forgetting in this list, but I count each and everyone of them as a friend. All I can say is thanks for the wonderful site and for giving me the oppurtunity to meet all these other people. I am hoping to meet more of my friends. I swear these are the people I bare my soul to.
I also visit another site it is Insulin-pumpers.org. I have never met the creator of that site or his daughter but they both are fantastic people who built a group that focuses on insulin pumpers. I have met CC from IP, Heidi is also a member of IP, Steve and then there is Ed from Virginia. I know there are others I have met from this site but the names escape me now. I have to say that diabetes has given me some GREAT friendships with people who understand. I never went to a diabetes Camp but consider the CWD conferances to be like a camp. I am saving my money to attend the FFL conferance this year. Okay well that is my post.
I forgot to count my blogging friends and online friends. There are so many. Everyone inspires me and I am not sure I would have ever read D related bogs if I were not Diabetic. So everyone keep you chins up and keep posting.
Thursday, November 09, 2006
A post for D bloggers day
I promised this would be an more upbeat post after my rantings yesterday. I have to say sometimes I am grateful for the people I have met because I have D. Let me see the people whom I have met personally and admire so much. A lot of them are children or parents of D. Some are others with type 1. First I have gotten to meet Ellen and Zach. Ellen is just an inspiration to me. She campaigns for a cure and works hard with the DRI. Zach is another inspiration. He is a great kid who handles d as if it is a bump in the road. I have met Sally and Joey. Sally is such a sweet lady and Joey is just such a nice boy. I actually put a rapid D in Joey. I have to say I think it is harder to insert a set into a young child then anything else. Such a different perspective. I have also met Carol, William, Roderick, and Hal. William is the type 1 in this family. He is so little but handles the D like a troooper. I have had the pleasure of meeting Heidi of D-log cabin fame. She would tell you I never shut up. She is the quietest person I have ever met. I had a ball in DC and at FFL conferance with her. She is such a sweetie. I have met Stacey, Jesse, and Jesse's dad. I forgot the husbands name sorry. Jesse just makes me laugh and Stacey is a fantastic mother. I have met Wendy from NY and Jessica these two inspire me also. These are just the people I have met through CWD. Oh I also forgot. I got to meet Marissa Hitchock and Jeff Hitchcock, the inpiration and creator of childrenwithdiabetes.com. I have also gotten to meet Laura Billetdeux and her son Sam. I know there are people I am forgetting in this list, but I count each and everyone of them as a friend. All I can say is thanks for the wonderful site and for giving me the oppurtunity to meet all these other people. I am hoping to meet more of my friends. I swear these are the people I bare my soul to.
I also visit another site it is Insulin-pumpers.org. I have never met the creator of that site or his daughter but they both are fantastic people who built a group that focuses on insulin pumpers. I have met CC from IP, Heidi is also a member of IP, Steve and then there is Ed from Virginia. I know there are others I have met from this site but the names escape me now. I have to say that diabetes has given me some GREAT friendships with people who understand. I never went to a diabetes Camp but consider the CWD conferances to be like a camp. I am saving my money to attend the FFL conferance this year. Okay well that is my post.
I forgot to count my blogging friends and online friends. There are so many. Everyone inspires me and I am not sure I would have ever read D related bogs if I were not Diabetic. So everyone keep you chins up and keep posting.
I promised this would be an more upbeat post after my rantings yesterday. I have to say sometimes I am grateful for the people I have met because I have D. Let me see the people whom I have met personally and admire so much. A lot of them are children or parents of D. Some are others with type 1. First I have gotten to meet Ellen and Zach. Ellen is just an inspiration to me. She campaigns for a cure and works hard with the DRI. Zach is another inspiration. He is a great kid who handles d as if it is a bump in the road. I have met Sally and Joey. Sally is such a sweet lady and Joey is just such a nice boy. I actually put a rapid D in Joey. I have to say I think it is harder to insert a set into a young child then anything else. Such a different perspective. I have also met Carol, William, Roderick, and Hal. William is the type 1 in this family. He is so little but handles the D like a troooper. I have had the pleasure of meeting Heidi of D-log cabin fame. She would tell you I never shut up. She is the quietest person I have ever met. I had a ball in DC and at FFL conferance with her. She is such a sweetie. I have met Stacey, Jesse, and Jesse's dad. I forgot the husbands name sorry. Jesse just makes me laugh and Stacey is a fantastic mother. I have met Wendy from NY and Jessica these two inspire me also. These are just the people I have met through CWD. Oh I also forgot. I got to meet Marissa Hitchock and Jeff Hitchcock, the inpiration and creator of childrenwithdiabetes.com. I have also gotten to meet Laura Billetdeux and her son Sam. I know there are people I am forgetting in this list, but I count each and everyone of them as a friend. All I can say is thanks for the wonderful site and for giving me the oppurtunity to meet all these other people. I am hoping to meet more of my friends. I swear these are the people I bare my soul to.
I also visit another site it is Insulin-pumpers.org. I have never met the creator of that site or his daughter but they both are fantastic people who built a group that focuses on insulin pumpers. I have met CC from IP, Heidi is also a member of IP, Steve and then there is Ed from Virginia. I know there are others I have met from this site but the names escape me now. I have to say that diabetes has given me some GREAT friendships with people who understand. I never went to a diabetes Camp but consider the CWD conferances to be like a camp. I am saving my money to attend the FFL conferance this year. Okay well that is my post.
I forgot to count my blogging friends and online friends. There are so many. Everyone inspires me and I am not sure I would have ever read D related bogs if I were not Diabetic. So everyone keep you chins up and keep posting.
Wednesday, November 08, 2006
Tired and Cranky
I am tired and cranky and in such need of a nap. October was hectic to put it mildly. Just super busy but did have some fantastic times. It is now November and life is getting hectic again. I am just so tired of dealing with the constant pain of the RSD and the comments of people. For those of you who don't know, I have RSD or Reflex sympathetic dystrophy also known as Chronic regional pain syndrome. I am basically in constant pain in my foot. If i try to plant the foot it is EXCRUCIATINGLY painful. The worse thing is the pain has begun to travel up higher and stay in the other areas for a longer period of time. I have a pretty good tolerance for pain. What drives me absolutely nuts are the dumb comments people make. I'm sorry try living for a day in my shoes and tell me how you feel. I am just so frustrated with the crap in my life it isn't funny. To top it all off I need to get a lawyer to help with my SSD appeal. I hate dealing with this crud. Also dreading that I need to go back to pain doctor for a pump refill. Read previous posts and you will understand why I hate that. Of course this next one will be a long visit he wants to try some oral medications on me. I am not sure if this is a good or bad thing. He keeps trying to tell me that I have Diabetic neuropathy. He seems to overlook the fact that the pain or affected area is only on the one side of the body. Generally neuropathy is bilateral. We also consulted with one of the TOP rsd docs in the country and he confirmed it is RSD. That was back in February, 2002. He actually recommended some treatments for me. I have a big fear of the oral meds. One of the pain meds they had me on really messed up my memory. My mom says it is worse then her's and she is 40 years older then me. This is a hard thing to prove that you are a basic imbecile at times but perfectly normal at others. It really depends on the day of the week. The other thing the RSD has screwed with is sleeping. I don't sleep much at all. We are talking 2 hours of sleep wake up. I do try to stay laying down to get some more but it doesn't work. Well pain doc did offer me something for sleep. He didn't write out the script though. Hopefully next time and the med work. Unfortunately for me most of the meds that would have a 400 lb gorilla sleeping like a baby don't knock me out at all. A resident said looking at the amount of Elavil, anti depressant used for pain management also, I was on she couldn't believe I was a functioning human being. I actually feel that the pain doctor here feels we might not have many or any more options. Basically, I have to learn to function with it.
Right now I am just Angry all the things RSD has taken from me. Let me see the ability to play softball. I used to coach Basketball and soccer. I basically felt after a year of trying it wasn't worth it when you couldn't run and it just triggered more agony. I don't drive anymore because of the memory issues. I swear I am not sure I could find my way out of a paper bag. It took from me a work that I loved. My goal of becoming a PA or NP has also flown out the window with this damn disease. I think it has given me one hell of a case of depression also, so it took away my happiness. I was generally a happy go lucky person before the RSD. Now, I am usually like that but there are times when i just blow up for no reason. Let's see there is other shit that this RSD has taken from me just trying to remember what they are. The one thing I will never allow RSD to steal is my girl scout work. I would love to lead another girl scout troop in a younger level. Well, I need to go lay down and rest my sore back. I think that is another gift of RSD. I also have lost a lot of trust in doctors from dealing with RSD. Some I have felt were excellent have turned to absolute imbeciles. I believe cause of his inablity to handle the RSD. Well, I will be posting tommorow about Diabetes. I promise. I don't think I will be as down about that. If I had to a choice to give up one disease. I think I would pick givin up the RSD.
I am tired and cranky and in such need of a nap. October was hectic to put it mildly. Just super busy but did have some fantastic times. It is now November and life is getting hectic again. I am just so tired of dealing with the constant pain of the RSD and the comments of people. For those of you who don't know, I have RSD or Reflex sympathetic dystrophy also known as Chronic regional pain syndrome. I am basically in constant pain in my foot. If i try to plant the foot it is EXCRUCIATINGLY painful. The worse thing is the pain has begun to travel up higher and stay in the other areas for a longer period of time. I have a pretty good tolerance for pain. What drives me absolutely nuts are the dumb comments people make. I'm sorry try living for a day in my shoes and tell me how you feel. I am just so frustrated with the crap in my life it isn't funny. To top it all off I need to get a lawyer to help with my SSD appeal. I hate dealing with this crud. Also dreading that I need to go back to pain doctor for a pump refill. Read previous posts and you will understand why I hate that. Of course this next one will be a long visit he wants to try some oral medications on me. I am not sure if this is a good or bad thing. He keeps trying to tell me that I have Diabetic neuropathy. He seems to overlook the fact that the pain or affected area is only on the one side of the body. Generally neuropathy is bilateral. We also consulted with one of the TOP rsd docs in the country and he confirmed it is RSD. That was back in February, 2002. He actually recommended some treatments for me. I have a big fear of the oral meds. One of the pain meds they had me on really messed up my memory. My mom says it is worse then her's and she is 40 years older then me. This is a hard thing to prove that you are a basic imbecile at times but perfectly normal at others. It really depends on the day of the week. The other thing the RSD has screwed with is sleeping. I don't sleep much at all. We are talking 2 hours of sleep wake up. I do try to stay laying down to get some more but it doesn't work. Well pain doc did offer me something for sleep. He didn't write out the script though. Hopefully next time and the med work. Unfortunately for me most of the meds that would have a 400 lb gorilla sleeping like a baby don't knock me out at all. A resident said looking at the amount of Elavil, anti depressant used for pain management also, I was on she couldn't believe I was a functioning human being. I actually feel that the pain doctor here feels we might not have many or any more options. Basically, I have to learn to function with it.
Right now I am just Angry all the things RSD has taken from me. Let me see the ability to play softball. I used to coach Basketball and soccer. I basically felt after a year of trying it wasn't worth it when you couldn't run and it just triggered more agony. I don't drive anymore because of the memory issues. I swear I am not sure I could find my way out of a paper bag. It took from me a work that I loved. My goal of becoming a PA or NP has also flown out the window with this damn disease. I think it has given me one hell of a case of depression also, so it took away my happiness. I was generally a happy go lucky person before the RSD. Now, I am usually like that but there are times when i just blow up for no reason. Let's see there is other shit that this RSD has taken from me just trying to remember what they are. The one thing I will never allow RSD to steal is my girl scout work. I would love to lead another girl scout troop in a younger level. Well, I need to go lay down and rest my sore back. I think that is another gift of RSD. I also have lost a lot of trust in doctors from dealing with RSD. Some I have felt were excellent have turned to absolute imbeciles. I believe cause of his inablity to handle the RSD. Well, I will be posting tommorow about Diabetes. I promise. I don't think I will be as down about that. If I had to a choice to give up one disease. I think I would pick givin up the RSD.
Subscribe to:
Posts (Atom)